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Improving Care

Making a difference in everyday lives

All of our work begins and ends with patients. We’re committed to understanding the challenges of living with pulmonary fibrosis today. To address the urgent needs of affected individuals and caregivers, we work with high-impact programs designed to provide support, optimal care, and access to the best treatments.

ABOUT 50,000 
U.S. PATIENTS
ARE DIAGNOSED
WITH IPF EVERY YEAR

UP TO 50% 
OF INITIAL DIAGNOSES
OF IPF ARE INCORRECT

OVER 5 MILLION
WORLDWIDE
ARE AFFECTED BY Pulmonary Fibrosis

Our Projects

Our projects focus on empowering patients and caregivers through disease education, support programs, and enhanced care options for a higher quality of life.

Dorothy P. and Richard P. Simmons Center for Interstitial Lung Disease University of Pittsburgh

The Dorothy P. and Richard P. Simmons Center for Interstitial Lung Disease created a new tool to support disease education for newly diagnosed patients and their families. With guidance from a nurse, patients and caregivers can use the resource to discuss the disease, its progression, and best practices for care management. The SUPPORT book and related process has since been revised and is in the process of being evaluated at ILD clinics across the country.

American Lung Association Supplemental Oxygen Reform Campaign

Three Lakes Foundation has collaborated with the ALA and leaders in the lung health community to improve patient access to appropriate supplemental oxygen equipment. This has included supporting a significant advocacy effort on Capitol Hill and working with the Centers for Medicare and Medicaid Services — work that laid the foundation for a proposed advocacy campaign to improve patient quality-of-life issues, fighting to ensure all patients have access to the liquid oxygen they need.

American Lung Association Patient Support Initiatives

Three Lakes Foundation assisted in development of training programs and other educational materials designed to instruct patients in the safe use of supplemental oxygen therapy, including an IPF awareness pilot at the 2018 Philadelphia LUNG FORCE Expo, a local education event for health care professionals, patients, and their caregivers to learn more about lung health issues.